AMARA ZEB

Our goal is to give back to the people that touched us directly and helped our daughter AMARA MIA ZEB when she was in the NICU for 134, and then re-admitted to the hospital on Sept 12, 2016 and passed away exactly 30 days later on October 12, 2016. She had a short life but was able to touch so many lives & hearts. In doing so, she has allowed us to continue her journey with this foundation. We will continue to touch & support everyone that has played an important part in her short life and those who supported us through the most devastating days of our lives. Amara’s Butterflies will fly and watch over as many families, children and babies for as long as we can. She would have wanted it this way.

October 12th will forever be our most treasured day..

Krayon Kiosk

The Tree I See

“Robert Mascarelli has worked as a Physician Assistant in the field of neurosurgery for over 15 years in the NY Tri-State area. His life experience in treating and caring for pediatric patients, who’s life at times may end un-expectedly, inspired him to write this story about a young tree that encounters a dark and difficult moment. The Tree represents any child or patient who may encounter a dark, difficult, and challenging life event.   It is important for us to remind one another that even though we may not be able to hear, see, or touch those we love.  We are together always, never apart – rooted in the tapestry of life, resting peacefully in each others heart, and unbound by loves magnificent light.  This is the Message of The Tree I See.”

This book is free, as a video – to help those in need who are trying to cope with the loss of their beloved child. Please share with friends and family if you felt encouraged by this story. Awareness and contributions will help us make a difference in the lives of others by donating just $1 to Amaras Butterflies.

Robert Mascarelli

Discover

Our Story

Amara and Kadir were born on 4-28-16. Kadir, who was PROM (premature rupture of membranes) at 21 weeks, was the reason why I was admitted to SB hospital antepartum unit. His water leaked, and they presumed it was due an infection. I didn’t believe it, my motherly instincts told me that was not it. I was told I could deliver within the next 1-2 weeks and if that happen then both babies would not be viable for this life outside the womb. I will not write my real respond to that statement to the wonderful NICU staff that talked to me that day, but the clean version was something like – “these babies and I are not going down without a fight” was sort of the response (clean version, pregnancy hormones, #mamabear).

We were scared, we worried about what the outcome was going to be. Were we going to lose our children even before birth? What did I do or not do to cause this? Was there a way I would have been able to reverse this?

To keep the anxiety down & keep myself strong, I talked to my babies every day, letting them know that we were a team. That we would last as long as God willed it and we would get to viability. Each day passed, and it was a blessing. Each week passed, and it was a miracle. So, my motto on my hospital wall was Each day is a blessing, each week is a miracle.

It was even harder because my 18-month-old son Amir was home with my mom and without me. He stopped talking to me and when he visited me at the hospital, he refused to come to me unless prompted. I knew something was wrong, but I didn’t know how to fix it. To this day I feel the mommy guilt, that I failed him to save his siblings, that I lost his trust because he felt like I abandoned him.

“Every day is a blessing, every week is a miracle!”

WE NEED YOUR HELP

Give a helping hand to those who need it

Our goal is to give back to the people that touched us directly and helped our daughter AMARA MIA ZEB when she was in the NICU for 134, and then re-admitted to the hospital on Sept 12, 2016 and passed away exactly 30 days later on October 12, 2016. She had a short life but was able to touch so many lives & hearts. In doing so, she has allowed us to continue her journey with this foundation. We will continue to touch & support everyone that has played an important part in her short life and those who supported us through the most devastating days of our lives. Amara’s Butterflies will fly and watch over as many families, children and babies for as long as we can. She would have wanted this way.

October 12th will forever be our most treasured day.